Tuesday, October 25, 2011

It's been a long time...

It's been a really long time since I've written. I really don't know where to start.

My man had another heart attack in April the day after I returned home from a 3 day trip to Georgia to see my ill mom. My daughters accompanied me on the flight as I would not have made it on my own otherwise.

This was his second heart attack. He was 38 when he had the first one. He already had 2 stents in his heart when he had this second one. They had to replace one stent entirely and repair the other.

He returned to work 9 days later. Just like the first time he returned within 2 weeks. He's 43 now.

Last month I spent 9 days in the hospital with our 14 year old son. 6 days in PICU. He was intibated for nearly 3 days as a result of a skull fracture and 3 areas of bleeds including his frontal lobe. He's doing well considering but will be a long road to recovery.

He had just started high school less than 2 weeks before. Now he's on Home Hospital. We're home schooling him until at least Jan 1st, 2012. He's in the Police Explorers program. Am really proud of him. He was honored by the state Senator on the steps of the Sacramento State Capital over the summer. He was one of 2 children in his district to receive such recognition. He's going to the Tsunami Convention 2 days after Christmas and has become active in the Baptist Church.

My plate has been so full that I haven't co hosted the Living with Hope radio show in some time.
Hoping to do so again soon.

I am still working at MDJ and now I have my own support group on Facebook. A few years ago I had a popular one at MySpace, but eventually moved some members to MDJ while others went elsewhere. MySpace was doing so many changes and finally Groups went bye bye.

My Group on Facebook is relatively new still. Perhaps 3-4 months old. It was created and then stalled the first 2 months due to other priorities.

Still doing all I can to promote awareness for CRPS/RSD, offer resources, info and support.
I try to make it online every other day. The days of everyday, all day are in the past. Just can't manage it all as I once did. I use to do all niter's when I couldn't sleep, now I just toss and turn waiting and waiting for sleep to come. I often flip the clock without sleeping and then finally crash repeating the same thing with each new day.

I haven't been in a chat room for years. Way back when .. I use to frequent them. Just don't have the energy or time for it anymore.

If I could find a fun one.... maybe.

We had our grandson over the weekend. It was a planned occasion. Took him to the Pumpkin patch. When we got home his uncle (our son) helped him carve his pumpkin. 'Tai spent the night with us and I rode with the man Sunday evening to take him home. Got some pictures at the Pumpkin Patch too. It's hard to believe our grand baby boy is heading on 6.

It was great! Like a fair of sorts. Rides, bounce houses, ponies, lots of hay, mazes, face painting, games, ball tosses, wow, if only we knew.

We had taken the girls there when they were little, our son also. But back then it was nothing like this.

Now we know for next year! I walked it the best I could. Had the wheelchair, but the ground was too rough, so I used it as a walker then carried the pumpkins in it. lol

Tomorrow's my bday, not doing anything, just staying home. I would love a single pain free day. That's it!

Not much else to talk about right now, but I hope all is well with everyone.

Until next time...


Snowbrush said...

Oh, Twinkle, I'm so sorry about your husband and son, but was glad to read that you were able to travel all the way to Georgia.

Kold_Kadavr_flatliner, sub/dude said...

Yes, I can in fact judge you; every Christian has a moral obligation to warn unbelievers they're falling. How wood you like someone who knows the bridge is out but didn't dare to tell you? 'Nuff sed. Girl, lemme kiss your adorable feets in Heaven. God blessa youse -Fr. Saducci, ol SNL

Snowbrush said...

I hope things are going well for you, kiddo. Long time, no hear. I often think of you and wonder how you are.

Karen said...

Oh God Twink I just read this now. I know it's a bit late but I'm sorry about the Man having a heart attack; is he okay?

Love to you both and your family also.


Snowbrush said...

You're awfully quiet, hon.