ADHD, etc

Just when I thought life couldn't get harder.. it is. As some of you may know, I've been home schooling our son for the last 4 weeks. Yesterday school officials informed us that he would not be allowed back in school without a doctors release and being medicated.

He's been deemed severely ADHC by the Connor scales which 3 teachers and the principal filled out. I've seen changed in our son this last year, but I honestly believe that too many people are being given diagnosis' just to add meaning to problems. In our sons earlier school grades he was quite smart, his grades and SATS above average.

My son just can't sit still, he's bored easily, unlike some kids he takes extra initiative to answer questions (a few of his teachers praised him and us for this) the others found it disrespectful. When an adult is negative to him or tries to scold him, he will lash back out. He's very dominant. He won't stand down especially when he is right.

"course I've looked up all the symptoms and he has them all. It's just that I believe kids are affected by lifes circumstances. Heck, adults are affected by same and lash out.

Kurt was 3 when I was injured. He's gone through much and lost much. I believe that people possess inner strength to over come most all things. I've been teaching him deep breathing, things that I've learned for my own illnesses to learn how to be calm during the worse of it.

Needless to say since we've received that phone call, I've been... I dunno..

Only know our son is everything to me and I don't see how someone can force us to medicate him. I would do anything including medication to help him, but I'm not sure that's the right way to go.

We lost our health insurance nearly a year ago and the man has been refusing medi cal and similar since. We have never applied for things like this. But now, he say's for his sons sake, we have no choice. He's say's he's been helpless to help me all these years and I assure him it's okay because there's nothing he can do. Keeping me is helping me. He does have a chance to help our son and so last evening we opted to find out how to apply for health assistance. See if it was the man and I, we would not ask for assistance, we raised our daughters up and now need to do what we need to for our son or this will get even more out of control.

I'm just going to keep smiling, and smiling, and when I'm sad.. look at him, our son, grand son daughter's and smile again...

Because when they see me smile, they don't see my pain, and they smile...

I go back into surgery in the next 6 months.. it's all this crap that remains in our sons mind and heart, I know it.

The man and son exchange words often and it's because there's 2 strong dominants under the same roof, strong alpha males and everyone knows put to alpha's together, one of them will usually back down or defer.. these two don't.

Our son knows more about Gorean ideals and gorean living more than most 30 years old. It's been his up bringing and when it comes to taking charge, he's right on top of it.

Surprisingly it's the male teachers that have little to no problem with him except one from time to time and it's the female's that do. We've tried to tell him that once labeled the bad kid, often he will not be given another chance even when he's doing good. We've tested this and we were right.

There were days when he did well in class and still one of those females would find something, anything to put him down for..

I realize it wasn't quite nice to tell his teacher to "Be silent, woman" or "stop yelling at me, woman", but I also realize there was lots more he could have said. I really didn't think it was all that bad. At least he didn't say.. Be silent, slut! lol

Other females like counselor's, passerby's in the stores, or else where, adore him. He holds doors open for elderly, is compassionate to those with my own illness and even others. He cares.

Kurt joined 2 support groups with me at MDJ and was eager to do so. The ADHD group has 467 members, but the ADHD-Teens only 42 and no leader.. I bypassed the application form and notified the owner of the entire site to ask if he would give me a chance in leading this kids.

Being that I'm already a Group Leader there in the RSD Forum and second in charge of 5 leaders, as well as an Advocate, my Master gave me his permission, but warned me to be careful of overload. I told him if it became too overwhelming, I would seek out another leader for the kids and either remain as a back up or step down entirely.

I've been struggling with this in my first group, but the thing is is everyday is overwhelming for me. I have an idea of how to help these kids.. I'm good at things like that. Even in my RSD group, I run games and other things for distraction. Not every thread is technical.

I'm a leader, I'm just not dominant. I defer to the man above me. Even if appointed leader to the ADHD-Teens (as the first and only leader) I would still defer to a man. The owner himself.

So far both are pleased with my work there. I'm allowed to take initiative (that is important to the owner) and I do. I don't wait for someone to give me permission, but I do accept consequences.

Just as a slave, I do not need to be told every moment of the day what is expected of me. I know what is expected of me.

Well phew.. I know I babbled on a lot tonight...

My life has been full of challenges, some extreme, I'll get through this one too...

For my sons sake..

Until next time..

Discussing Pain Can Cause Pain

Greetings everyone
(Cross posted from MDJ June 21, 2009)

As you know I've been quite busy with the Functional Restoration program which I've been attending since May 26th. I will graduate around the 15 of July.

When my doctors told me to let everything go that had to do with RSD/CRPS, I didn't understand. I even struggled with it. I didn't understand why they would tell someone who's put years into advocating, promoting, advertising, supporting RSD related circumstances and their heart to just.... back off.

I'm finally understanding why.

When we speak of pain, share our stories, discuss WC, all the pain it's caused us physically and mentally, the turmoil, the stress, how there is no cure for us, we are reliving the injury and pain that brought us to a suffering point of existence over and over again.

After deep deep thought, I can now understand what they mean and for our own sakes.

While I always believed that opening up (when I was finally able to do it) was a road to acceptance, I never believed in any way that by doing so could be detrimental to me.

Because I've started too much that I can't go back on, I won't be leaving what I did behind. (what I did was bring many of us together, offer knowledge and insight, and more, just like most of us do) We're on this road to make a change, provide awareness and really try to do something about it.

Instead I have to find balance to do as my doctors instructed me AND finish what I started.

Now I ask each of you.. (Please think about this carefully)

Does it help you to speak of your prior lives, your existing pain, all the hell this has cast down upon you...

Or when you really think about it...

Does it tense you to do so? If it tenses you, it's adding to physical pain, if it's causing you to think back, it's adding to your emotional pain. This will always keep us in a painful cycle.

Just because I've finally come to believe this to be true, at least mostly true, doesn't at all mean any of you do. Instead, I would just like to know your feelings about it.

There is no right or wrong answer.

Thank you in advance for sharing...

( My name has been omitted because it just doesn't matter)

Reflections

Haven't written in a few days and have had a lot on my mind. For one, I just can't seem to shake the pain that invades my body everyday. The last 2 days have been rough. It seems like it's just one flare-up right into the next. My knees feel twisted, my calf is constantly on fire, meds hardly help, so I end up putting myself to sleep with Tylenol PM just so that I won't feel as much pain in my sleep. And hardly any until I awake for some reason.

I started treating my face with a series of lotions and my face is smooth and soft again. Even lines that started to appear are gone. Almost like a glow a woman gets when she's pregnant. I'm not pregnant though. Nope, nope, nope. That's a done deal.

Today I meet with the team of doctors at Compass to determine a plan of rehabilitation for me. Rehabilitation isn't really the right word, I can't think of the word the assistant said to me on the phone, but it's setting up a plan of action to help me achieve some goals either way. Obviously I have been cleared as a candidate for this program.

One I know they're going to help me try to wear shoes again. I haven't wore any aside from hard rains for 8 years and I don't often go out in the rain, only if I have an appointment to go to. We're going to start turning my stim (SCS) off at night, I can't quite recall what else, but today I will learn what we're going to do for sure. While I'll more than likely be sharing with others what I learn as I go in this program, later, I'll be compiling a paper of teaching.

I've been keeping busy Leading the pain group and doing well.

I've been thinking about God and the bigger picture. Receiving at least a dozen of private emails a day asking me to pray for them in their darkest hours of pain. I always do. I've been called an inspiration so many times in open forum and privately. How can this not make me feel good? It does. It always does.

There's a Neurotropin study in Clinical Trial and still recruiting patients for CRPS type 2. Unfortunately the study is too far away for me to particape in.

Something came up in the group that really got me thinking.. One person said they believed all things happen for a reason, something I've thought also, then another person said if they believed that things happen for a reason they'd have to also believe they did something so bad as to have this illness placed upon them. The girl ended the sentence with.. I've never done anything so bad to deserve this.

That really got me thinking... I even found it to be true in many ways. It made me think of myself and my past, growing up, adulthood etc.

I too have never done anything to deserve this. I've always been a helping hand, a listener, a warm compassionate, passionate, always giving, not caring to receive, a life of service of one kind or other.

It reminded me in a way of when bad things happen to good people.

Until next time...