Wednesday, May 27, 2009

2nd day completed at CFRP

It's been a tiring last 2 days. I'm still learning what's expected of me in the program. I'm making goals, changing patterns, adding routine, doing Yoga 3 times a day, doing relaxation for 30 minutes a day, memory mastering, bio feedback and so much more.

Today I did my first bio feedback session. I'm not in the "Zone" yet, but once I am and can retain it, I can move on to the next level. This measures ones heart rate as a person begins to meditate in a sense, beginning with breathing, calming and going to "a happy place" in ones mind and staying there. I'll be able to give more information later once I learn more.

I also did mirror therapy. Some may have heard of mirror box therapy where you trick a damaged limb into thinking it's really there and normal. IT REALLY WORKS. Will talk more about this another time also. Tomorrow is only my 3rd day.

I don't have extra time in the morning and the evening is for my family and to achieve goals. When I set these goals they have to be completed and discussed by the next day.

I have already cut down on 3 total meds. I started on my own a few days ago and told my doctor when I met with him today. I have completely stopped Zanaflex/Tizanadine, Klonopin/Clonazapam and Neurontin.

When I jump into something I tend to jump head first. If I can keep off them is yet to be seen. I'm feeling some withdrawals, but handling it.

Tomorrow I start walking (ugh) and being tortured (bigger UGH)

I'm quite sore already, I think the sitting has been worse than the standing as of yet, but butt hurts bad. My SCS decreases with activity, or increases with opposite activity, so that's tough because it's not continuous stimulation through my legs.

My work book is thick and other than assignments is full of valuable information. I'll be cutting down on caffeine (ouch) and not having any after 5 p.m. I'm limiting myself to 3 cups a day at this time until I can get by with only one cup in the morning to wake up with.

I'll also discuss in further detail later about the sympathetic nervous system (fight or flight).

I may repeat myself here at times, my short term memory is probably not repairable from the high doses of Neurontin, the time I've been on it and pain itself, but who knows, maybe.

I did learn 5 new words today forward and backwards. I'll explain more about this later also. If I get some time this weekend, maybe I'll try then.

After I've completed this program I'll write an entire essay/article/complilation of all of it in hopes that I can teach others or atleast a beneficial read. I will eventually wean away from doing many RSD/CRPS related things that I do now. While it may seem strange, my doctors want me to and I didn't understand why at first because I've been complimented by them all and they give my site out at program etc.

It has nothing to do with having not done well.

More along the lines of having done too well.

I have succeeded and accomplished something really great.. It's time to move forward.

Until next time...


Louve said...


Congratulations on your accomplishments!! You sound, although tired, excited and happy about it though...and why wouldn't you be. *grins* You really are accomplishing so much from the starting line.

I'll be looking for more updates, and about the mirror box thing. I never heard of it, but it sounds intriguing.

I'm so happy for you, and keeping you in my thoughts!!


His kajirah said...

Hi Louve

Thank you much! Finally the weekend. Yay.

Will tell you more about mirror box or mirror therapy soon. ~smiles

I think it may help you also. I was sort of a skeptic at first, but now, I believe in it.